We have a new Featured Parent to introduce you to!
Fun and Function: Who are you and your kids?
Amy: I’m Amy, and my son is Aidan, 7.
FF: What is the nature of their special needs?
A: Aidan has ADHD, and possibly MCADD – a genetic deficiency in which he cannot store fat or easily turn food into energy that can be stored. All energy is created for immediate use.
FF: What would you say is your biggest challenge in raising a child with special needs?
A: My biggest challenge as a mom, and a special education teacher, is having family members accept that I cannot only separate the 2 roles, but also have a huge advantage by being able to bring them together. It is so incredibly difficult to enlist the help of family members when they are unwilling to accept that there is a disability of some kind and to trust that as a parent, you are doing your best to find the best resources available.
FF: What would you say is your greatest joy in raising your child?
A: Having a child who is fun, funny to be with, quick with a silly comment, and who keeps us on our toes is the best thing about being a parent. Whether the parent of a kid with needs or not. Every kid out there has a “need,” some children just show it in more obvious ways than others.
FF: What would you say has been the biggest help you in raising your child?
A: That’s really a multi-level question. At home, it’s having a spouse who is supportive and patient, without question, and having furry family members around to help spread the love without question over differences that occur. Having a pediatrician and medical group available anytime, and having that doctor take your child’s needs personally and seriously is a huge benefit! We were randomly assigned this particular pediatrician when we joined our medical group and we are blessed to have him offer support, information, and take time out from his own family to do research and share information with us.
FF: Give us one tool you would hate to live without.
A: I don’t think I could live without some of the online communities and resources that are currently available. It’s truly amazing what you find once you start looking. Whether in the form of someone saying, “Hey, I know that doctor,” or “Maybe try this supplement/book/etc,” just having the opportunity to look up info is essential and to be able to reach out to others is incredible! Connections are made for your child, and for yourself! There is so much support around, even if someone doesn’t know exactly how you feel, there’s always a friend to share a smile.
FF: If you could give one piece of advice to another parent who’s child has just been diagnosed, what would it be?
A: I am sure many people say it, but research, read, and ask questions. LOTS of them. If you don’t feel good about one doctor, find another and keep going until it feels “right.” The right relationship is everything and you will find the answers you need that way.
Amy, thank you so much for taking the time to talk to us and all the readers here at Fun and Function.
If you would like to be a featured parent or professional, just let me know!